Are Requirements to Deposit Data in Research Repositories Compatible With the GDPR?

Berkman Klein Center: “To reproduce study findings and facilitate new discoveries, many funding bodies, publishers, and professional communities are encouraging—and increasingly requiring—investigators to deposit their data, including individual-level health information, in research repositories. However, this requirement may conflict with the core privacy principles of European Union’s General Data Protection Regulation (GDPR), which establishes legally binding rules for processing personal data in the EU, as well as outside the EU in some cases,’ according to a new article in Annals of Internal Medicine co-authored by BKC’s David O’Brien. “Developing solutions that support data deposition while ensuring legal compliance is necessary for research. Adopting the right solutions will lead to greater transparency and accountability in data sharing, as well as a more efficient and equitable scientific practice.” Read…

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